On 13th April 2013 a friend of mine Limara gave birth to a beautiful baby girl called Orlaith Rae
I am sure you will agree how beautiful she is. Unfortunately for Orlaith and her Mummy & Daddy they would soon find out that Orlaith was born with Congenital Hyperinsulism (CHI) which is a disorder where insulin is excessively secreted in the body, not being regulated by glucose appropriately - this causes hyperinsulinaemic hypoglycaemia (hypo) episodes where insulin levels are high and ketone bodies aren't being made - this is extremely dangerous for the brain and the protection of brain damage; as it means it isn't getting the fuel (glucose) or ketone bodies (which generate different fuels) it needs. A safe blood sugar level for CHI is 3.5 and above - a hypo is anything below 3.5. There are two types - focal, where a certain area of the pancreas (a lesion) is producing too much insulin, or Diffuse, where the entire pancreas is affected.
Before i heard about Orlaith's story i had never even heard of CHI and the difficulties it could cause and i am sure there are many more people who haven't heard of it either.
That is why Orlaith's Mummy has started writing a blog to raise awareness of the disorder and help other Mummies and Daddies who are also dealing with such a tricky time.
I'd Love it if you could all go and see Limara's blog and see for yourself and share the link too so we can all make CHI more heard of.
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